Affordability Check
How to afford PROCYSBI
Generic name: Cysteamine bitartrate
Pick how you're covered. We'll show you the cheapest legitimate way to get PROCYSBI — your insurance copay, manufacturer savings, charity grants, or cash price. It takes 30 seconds and we never ask for your personal information.
Pick an option above to see your specific path.
Different insurance means different laws and different savings. For example, Medicare patients cannot use manufacturer copay cards (federal law) — but the manufacturer almost always has a Patient Assistance Program that gives the drug free.
About PROCYSBI and its cost
What is this medication? PROCYSBI is a prescription medicine used for the treatment of nephropathic cystinosis in adults and pediatric patients. Nephropathic cystinosis is a rare genetic condition that causes an amino acid called cystine to build up within the cells of the body. If left untreated, this accumulation can lead to significant organ damage, particularly affecting the kidneys and the eyes. This medication is a delayed-release formulation of cysteamine bitartrate, designed to provide a steady release of the active ingredient over time.
The medication works as a cystine-depleting agent by helping to remove excess cystine from the cells. By lowering these levels, the drug helps to prevent or slow the progression of crystal formation and subsequent tissue damage. It is typically taken twice daily to maintain effective levels in the system. Consistent use of this medication is essential for managing the long-term effects of the disorder and protecting vital organ function.
PROCYSBI is made by Amgen. Like most brand-name drugs, it's priced at a high list price — but patients rarely pay that list price. The options above are the real paths most people use to get it affordably.
Common questions
What's the cheapest way to afford PROCYSBI?
It depends on your insurance. On Medicare, apply for the manufacturer's Patient Assistance Program (PAP) — it gives the drug free if you meet income requirements. With private insurance, the manufacturer copay card usually drops your copay to $0-$25. Uninsured patients should compare the PAP with Cost Plus Drugs cash price.
Can I use a copay card with Medicare for PROCYSBI?
No — federal law (the Anti-Kickback Statute) prohibits manufacturer copay cards on Medicare, Medicaid, TriCare, and VA prescriptions. But Amgen has a separate Patient Assistance Program for Medicare beneficiaries. Check the options above.
Does my Medicare Part D plan cover PROCYSBI?
Part D coverage varies by plan. We query the CMS Prescription Drug Plan file to show you what percentage of plans cover it and at what tier. For your exact copay, pick "Medicare" above and check your plan's Summary of Benefits, or log in to Medicare.gov.
How long does a Patient Assistance Program take?
Most PAPs take 2-6 weeks from application to first fill. Ask the manufacturer about a "bridge supply" — many will ship 30 days free while your application is being reviewed so you don't go without the drug.
What if I have a high-deductible plan?
For generics, Cost Plus Drugs cash price is often cheaper than your deductible-phase copay. For brand names, the manufacturer copay card almost always wins. A GoodRx coupon can be a last resort for uncovered drugs, but it doesn't count toward your deductible.
Are there charity grants for Cystinosis?
Charities like HealthWell Foundation, PAN Foundation, Good Days, and the National Organization for Rare Disorders provide copay help for specific conditions. Funds often run out mid-year — apply early. We list the specific grants for your condition in the options above.
More about PROCYSBI
Full PROCYSBI drug page
FDA label, prior authorization rules, full indications list
More options for Cystinosis
Drugs, grants, and assistance for this condition
Guide to Patient Assistance Programs
How PAPs work, who qualifies, typical wait times
If your insurance denied coverage
5-level appeal playbook — Medicare has a 60% win rate at Level 3