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Pompe Disease Financial Assistance Program

The Assistance Fund

OpenData may be stale·Mar 20, 2026

The Pompe Disease Financial Assistance Program by The Assistance Fund offers grants for out-of-pocket costs related to Pompe disease, including prescription drugs, health insurance premiums, therapy administration, and travel to treatment centers or specialists (ground/air transportation, meals, hotel). Eligible patients must be U.S. citizens or permanent residents, diagnosed with Pompe disease, prescribed an FDA-approved treatment, have prescription coverage, and meet financial eligibility criteria based on household income and size. The program is currently on a waitlist.

Covers
financial assistance
Enrollment cycle
rolling

Status source

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Rare-disease support beyond financial help

This grant covers a rare condition. For specialists, clinical trials, and patient communities, our sister site UniteRare.org has in-depth pages: